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A seizure is an abnormal movement or behavior caused by unusual electrical
activity in the brain. In contrast, epilepsy is a group of related disorders
marked by recurrent seizures over a prolonged period of time, with no
identifiable short-term cause. Although seizures are a symptom of epilepsy, not
all people who have seizures have epilepsy. These resources can help you and
your child learn more about seizures and epilepsy.
Books for kids
Dotty the Dalmatian has Epilepsy - From the Dr. Wellbrook Collection; Tim
Peters & Company, 1993. (800) 213-5821.
Julia, Mungo and the Earthquake - Saxby Pridmore & Mary McGrath; New
York: Magination Press, 1991. (800) 213-5821.
Lee, the Rabbit with Epilepsy (intended for ages 4-8) - D. Moss; Rockville,
MD: Woodbine House, 1989. (800) 843-7323.
Mom, I Have a Staring Problem - Marian Carla Buckel and Tiffany Buckel;
Epilepsy Foundation of America; Landover, MD, 1994. (800) 213-5821.
My Brother Matthew - Mary Thompson; Woodbine House: Epilepsy Foundation of
America; Landover, MD, 1992. (800) 213-5821.
My Friend Emily - Susanne M. Swanson; Writer Press Service, 1994. (800)
213-5821. Epilepsy Foundation of America; Landover, MD, 1992. (800) 213-5821.
Taking Seizure Disorders to School: A Story about Epilepsy - Kim Gosslin;
Epilepsy Foundation of America; Landover, MD, 1991. (800) 213-5821.
Books for parents
The Brainstorms Family: Epilepsy on Our Terms - Steven C. Schachter, MD,
Georgia D. Montouris, MD, John M. Pellock, MD; Raven Press, 1996. (800)
213-5821.
Brothers and Sister: A Guide for Families of Children with Epilepsy -
Epilepsy Foundation of America; Landover, MD, 1992. (800) 213-5821.
Brothers, Sisters and Special Needs: Information and Activities Helping Young
Siblings of Children with Chronic Illness and Developmental Disabilities--D.J.
Lobato; Baltimore, MD: Paul H. Brooks. (800) 638-3775.
Children with Disabilities: Understanding Sibling Issues - L. Ambler, NICHCY
News Digest. Number 11, 1-12, Updated1994. (800) 695-0285.
The Comprehensive Evaluation and Treatment of Epilepsy: A Practical Guide--S.C.
Schachter & D.L. Schomer, Epilepsy Affiliate's Bookstore, 1997.
Does Your Child Have Epilepsy - James E. Jan, MD, FRCP, Robert G. Ziegler,
MD, and Giuseppe Erba, MD; University Park Press, 1991, second edition. (800)
213-5821.
The Epilepsy Diet Treatment, An Introduction to the Ketogenic Diet -
Dr. John Freeman, Millicent Kelley, RD, LD & Jennifer Freeman; Demos
Publications, 1995. (800) 532-8663.
Epilepsy (Diseases and People); M.K. Carson, Epilepsy Affiliate's
Bookstore, 1998.
Epilepsy (Health Watch) - M.E. Dudley & S.S. Spencer, Epilepsy
Affiliate's Bookstore, 1997.
Epilepsy : 199 Answers: A Doctor Responds to His Patients Questions -
A.N. Wilner, Epilepsy Affiliate's Bookstore, 1996.
A Guide to Understanding and Living with Epilepsy - Orrin Devinsky, MD;
Philadelphia, PA: F.A. Davis Company, 1994. (800) 323-3555.
Honorable Intentions: A Parent's Guide to Educational Planning for Children
with Emotional or Behavioral Disorders -- D. Jordan; Minneapolis, MN: PACER
Center, 1995. (952) 838-9000.
Issues and answers: A Guide for Parents of Children with Seizures, Ages Six
to Twelve; Epilepsy Foundation of America; Landover, MD, 1991. (800) 213-5821.
Issues and answers: A Guide for Parents of Teens and Young Adults with
Epilepsy, - E.R. Kobrin; Epilepsy Foundation of America; Landover, MD, 1993.
(800) 213-5821.
"My Child Needs Special Services": Parents Talk About What
Helps...and What Doesn't--N.O. Wilson; Bedford, MA: Mills & Sanderson.
Negotiating the Special Education Maze: A Guide for Parents and Teachers -
Winfred Anderson, Stephen Chitwood and Deidre Hayden; Bethesda, MD: Woodbine
House; 1990. (800) 843-7323.
Parenting a Child with a Behavior Problem: A Practical and Empathetic Guide -
P. Paquette & C.G. Tuttle; Los Angeles, CA: Lowell House, 1996. (310)
552-7555.
Parents Can Be the Key...To an Appropriate Education for Their Child
with Disabilities - Parent Advocacy Coalition for Educational Rights;
Minneapolis, MN, 1996. (952) 838-9000.
Parent's Guide to Special Needs Schooling: Early Intervention Years -
J.A. Cantor & R.F. Cantor; Westport, CT: Greenwood, 1995. (800) 225-5800.
A Parent's Guide to Accessing Programs for Infants, Toddlers and Preschoolers
with Disabilities; L. Kipper; Washington, DC: NICHCY, 1994. (800) 695-0285
(V/TTY).
School Planning: A Guide for Parents of Children with Seizure Disorders -
Epilepsy Foundation of America; Landover, MD, 1994. (800) 213-5821.
Seizures and Epilepsy in Childhood: A Guide for Parents - John M. Freeman,
MD, Eileen P.G. Vining, MD, and Diana J. Pilas; Baltimore, MD: The John Hopkins
University Press, 1990. (800) 537-5487.
Signs and Strategies for Educating Students with Brain Injuries: A Practical
Guide for Teachers and Schools -- Gary Wolcott, MEd, Marlyn Lash, MSW, Sue
Pearson MA; Houston, TX: HDI, 1995. (800) 321-7037.
Special education: IEP Checklist for a Student with a Brain Injury - R.
DePompei, J. Blosser, R. Savage, and M. Lash; Wolfeboro, NH: L&A
Publishing/Training, 1998. (919) 562-0015 or http://www.lapublishing.com.
The Special Needs Reading List: An Annotated Guide to the Best Publications
for Parents and Professionals -- W. Sweeney; Bethesda, MD: Woodbine House, 1998.
(800) 843-7323.
Steps to Independence: Teaching Everyday Skills to Children with Special
Needs (3rd edition); B.L. Baker & A.J. Brightman; Baltimore, MD: Paul H.
Brookes (800) 638-3775.
Switch: A Mystery; K. McColley, Epilepsy Affiliate's Bookstore, 1997.
Time out for Families: Epilepsy and Respite Care -- N. Karp & C.J. Ellis
; V. Epilepsy Foundation of America; Landover, MD, 1992. (800) 213-5821.
Traumatic Brain Injury: A NARIC Resource Guide for People with TB and their
Families -- National Rehabilitation Information Center; Silver Spring, MD, 1992.
(800) 521-8545.
Views from Our Shoes -- Don Meyer; Epilepsy Foundation of America; Landover,
MD, 1992. (800) 213-5821.
You, Your Child and Special Education: A Guide to Making the System Work -
B.C. Cutler; Baltimore, MD: Paul H. Brookes, 1993. (800) 638-3775.
Your Child and Epilepsy: A Guide to Living Well - Robert J. Gumnit, MD; New
York: Dermos Vermande, 1995. (800) 213-5821.
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