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A seizure is an abnormal movement or behavior caused by
unusual electrical activity in the brain. In contrast, epilepsy is a group of
related disorders marked by recurrent seizures over a prolonged period of time,
with no identifiable short-term cause. Although seizures are a symptom of
epilepsy, not all people who have seizures have epilepsy. These resources can
help you and your child learn more about seizures and epilepsy.
National Organizations
American Brain Tumor Association
2720 River Road
Des Moines, IA 60018
(800) 886-2282
www.abta.org
American Epilepsy Society
342 North Main Street
West Hartford, CT 0617-2507
(860) 586-7505
www.aesnet.org
The ARC (formerly the Association of Retarded Citizens)
1010 Wayne Ave., Suite 650
Silver Spring, MD 20910
(301)565-3842
www.thearc.org
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814-3015
(301) 657-0881
(800) 3-AUTISM ext. 150
www.autism-society.org
Brain Injury Association (formerly the National Head
Injury Foundation)
105 North Alfred Street
Alexandria, VA 22314
(800) 444-6443
www.biausa.org
Council for Exceptional Children (CEC)
1920 Association Drive
Reston, VA 20191-1589
(888) CEC-SPED or 232-7733
Fax: (703) 264-9494
www.cec.sped.org
Learning Disabilities Association
4156 Library Road
Pittsburgh, PA 15234-1349
Head Start Bureau
Administration on Children, Youth and Families
U.S. Department of Health & Human Services
P.O. Box 1182
Washington, DC
www.acf.dhhs.gov/programs/hsb
National Brain Tumor Foundation
414 Thirteenth Street, Suite 700
Oakland, CA 94612-2603
(800) 943-2873
E-mail: nbtf@braintumor.org
www.braintumor.corg
National Center for Learning Disabilities (NCLD)
381 Park Avenue South, Suite 1401
New York, NY 10016
(888) 575-7373
www.ncld.org
National Information Center for Children and Youth with
Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
(800) 695-0285 (V/TTY)
E-mail: nichcy@aed.org
www.nichcy.org National Information System for Infants with Disabilities
and Life Threatening Conditions
(803) 777-4435
(800) 922-9234, ext. 201 (V/TTY)
National Institute of Neurological Disorders and
Stroke/National
Institute of Health National Institutes of Health
PO Box 5801
Bethesda, MD 20824
(800) 352-9424
www.ninds.nih.gov/
National Respite Locator Service
800 Eastowne Dr., Suite 105
Chapel Hill, NC 27514
(800) 773-5433
www.chtop.com
National Tuberous Sclerosis Association
801 Roeder Road, Suite 750
Silver Springs, MD 20910
(800) 225-6872 or (301) 562-9890
www.tsalliance.org
Social Security Administration
(800) 772-1213 (V)
(800) 325-0778 (TTY)
Special Olympics International
1325 G Street, N.W., Suite 500
Washington, D.C. 20005
(202) 628-3636 Spanish/English
www.specialolympics.org
United Cerebral Palsy Association
1660 L Street N.W., Suite 700
Washington, DC 20036
(216) 791-3372
(800) USA-5UCP
Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785-2267
(301) 459-3700 or (800) EFA-1000
www.efa.org
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