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This listing is provided for your reference. The information provided by
these organizations is not necessarily endorsed by The Cleveland Clinic
Web Sites
Celiac Disease
www.icondata.com/health/pedbase/files/CELIACDI.HTM
Columbia University Gastroenterology Web
http://cpmcnet.columbia.edu/dept/gi
Digestive Disease Center, Medical University of South Carolina
www.ddc.musc.edu
Digestive System Diseases
www.mic.ki.se/Diseases/c6.html
Dysphagia Resource Center
http://dysphagia.com
Gastroenterology Consultants
www.gastro.com
GERD Information Resource Center
www.gerd.com
Healthweb: Gastroenterology Disease Resources
www.medlib.iupui.edu/hw/gastro
Helicobacter Foundation
www.helico.com
Irritable Bowel Syndrome
www.panix.com/~ibs/
Irritable Bowel Syndrome Self-Help Group
www.ibsgroup.org
Scope (Newsletter by and for people with IBD)
www.kitsap.net/health/ccl/scope.html
Seattle Barrett’s Esophagus Program
www.fhcrc.org/~barretts/
UCLA Digestive Disease Center
www.ddc.med.ucla.edu/DDC1.htm
UNC Division of Digestive Diseases and Nutrition
www.med.unc.edu/medicine/gi
National Agencies and Associations
American Association for the Study of Liver Diseases
1729 King Street, Suite 200
Alexandria, VA 22314
Phone: (703) 299-9766
www.aasld.org
American Cancer Society
Phone: (800) ACS-2345
www.cancer.org
American College of Gastroenterology
4900 B South 31st Street
Arlington, VA 22206
Phone: (703) 820-7400
www.acg.gi.org/
American Gastroenterological Association
7910 Woodmont Ave.
Bethesda, MD 20814
Phone: (301) 654-2055
www.gastro.org
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038-4810
Phone: (800) GO-LIVER or (800) 4HEP-USA
www.liverfoundation.org
American Society for Gastrointestinal Endoscopy
1520 Kensington Rd., Suite 202
Oak Brook, IL 60523
Phone: (630) 573-0600
www.asge.org
The Celiac Action Line
12733 Newfield Drive
Orlando, FL 32837
Phone: (407) 856-3754
Celiac Disease Foundation
13251 Ventura Blvd., Suite 3
Studio City, CA 91604-1838
Phone: (818) 990-2354
www.celiac.org
Celiac Sprue Associaiton/USA, Inc.
P.O. Box 31700
Omaha, NE 68131-0700
Phone: (402) 558-0600
www.csaceliacs.org
Cherubs: The Association of Congenital Diaphragmatic Hernia Research,
Advocacy and Support
1109 Williamsboro St.
Oxford, NC 27565
Phone: (866) 603-1944
www.cherubs-cdh.org
Crohn’s & Colitis Foundation of America
386 Park Ave. South, 17th Floor
New York, NY 10016
Phone (800) 932-2423
www.ccfa.org
Crohn’s & Colitis Foundation of Canada
60 St. Clair Ave. East, Suite 600
Toronto, Ontario M4T 1N5
Phone: (416) 920-5035 or (800) 387-1479
www.ccfc.ca
Cyclic Vomiting Syndrome Association
3585 Cedar Hill Rd. NW
Canal Winchester, OH 43110
Phone (614) 837-2586
www.cvsaonline.org
Digestive Disease National Coalition
507 Capital Court NE, Suite 200
Washington, DC 20002
Phone (202) 544-7497
www.ddnc.org
Immunization Action Coalition
1573 Selby Ave., Suite 234
Saint Paul, MN 55104
Phone: (612) 647-9009
www.immunize.org
Hepatitis B Foundation
700 East Butler Ave.
Doylestown, PA 18901-2697
Phone: (215) 489-4900
www.hepb.org
American Liver Foundation
Hepatitis C Hotline
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: (800) GO-LIVER
www.liverfoundation.org
Hepatitis Foundation International
504 Blick Dr.
Silver Spring, MD 20904-2901
Phone: (800) 891-0707
www.hepfi.org
Hernia Resource Center
P.O. Box 8500
Cranston, RI 02920
Phone: (800) HERNIAS
www.herniainfo.com
Gastro-Intestinal Research Foundation
70 E. Lake St., Suite 1015
Chicago, IL 60601-5900
Phone: (312) 332-1350
www.girf.org
Gluten Intolerance Group of North America
15110 10th Ave. SW, Suite A
Seattle, WA 98166
Phone: (206) 246-6652
www.gluten.net
International Foundation for Functional Gastrointestinal Disorders
P.O. Box 17864
Milwaukee, WI 53217-8076
Phone: (414) 964-1799 or (888) 964-2001
www.iffgd.org
Intestinal Disease Foundation
Landmarks Building, Suite 525
One Station Square
Pittsburgh, PA 15219-1138
Phone: (877) 587-9606
National Cancer Institute
NCI Public Inquiries Office, Suite 3036A
6116 Executive Blvd., MSC 8322
Bethesda, MD 20892-8322
Phone: (800) 4-CANCER
www.nci.nih.gov
National Institute of Diabetes and Digestive Disorders
Office of Communications and Public Liaison
NIDDK, NIH
Building 31, Room 9A04
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Phone: (301) 654-3810
www.niddk.nih.gov
National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812
Phone: (203) 746-6518
www.rarediseases.org
Pancreatic Cancer Action Network
2221 Rosecrans Ave., Suite 131
El Segundo, CA 90245
Phone: (877) 2-PANCAN or (310) 725-0025
www.pancan.com
Reach Out for Youth with Ileitis and Colitis, Inc.
84 Northgate Circle
Melville, NY 11747
Phone: (631) 293-3102
www.reachoutforyouth.org
Simon Foundation for Continence
P.O. Box 835-F
Wilmette, IL 60091
Phone: (800) 23-SIMON
www.simonfoundation.org
United Ostomy Association
19772 MacArthur Blvd., Suite 200
Irvine, CA 92612-2405
Phone: (800) 826-0826
www.uoa.org
Wound, Ostomy & Continence Nurses Society
4700 W. Lake Ave.
Glenview, IL 60025
Phone: (888) 224-WOCN
www.wocn.org
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